tag:blogger.com,1999:blog-906621410106004328.post3766406594553397706..comments2024-03-08T21:22:09.518-08:00Comments on Starring Scarlett: G-Tube LifeBrandi Weckshttp://www.blogger.com/profile/02163888241085994421noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-906621410106004328.post-76282496312198930272012-04-01T12:18:50.144-07:002012-04-01T12:18:50.144-07:00My son was on a G tube for 9 months. He is about ...My son was on a G tube for 9 months. He is about 2 1/2 and still has some weakness in his core, ie its harder to just sit up from lying on his back. besides that he is fine :) i highly recommend mybuttonbuddies.com if you are using anything for leakage. sooooo much better then gauze. we had my son in a lot of button down onesies and then t shirts later. also we only bought button down pajamas. the tube is never something we want but it was so helpful in getting my son the nutrients that he needed until his second jaw surgery. good luck with everything!!Sara Janellhttps://www.blogger.com/profile/11460478348997343670noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-61849185026053696092012-03-16T22:24:24.345-07:002012-03-16T22:24:24.345-07:00it sounds like there is still a bit of a challenge...it sounds like there is still a bit of a challenge with the g tube but the benefits FAR outweigh the previous method! I can't wait to see her first eating pic one day :)Mrs.Andrews-Next Adventure Travel Cohttps://www.blogger.com/profile/04962803327234636730noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-38508378240884052052012-03-12T20:04:34.799-07:002012-03-12T20:04:34.799-07:00I feel your pain! I still can't believe she s...I feel your pain! I still can't believe she spent that long on the NG tube. We've had a g-tube for over a year now. I have to say that I'm still not used to (or happy) that we have to feed by a tube. However, I'm glad we have the medical technology. Can you imagine the horror if we couldn't feed our little ones this way? I second another poster's link to Tubie Whoobies - after about 2 months of gauze, we were thrilled to switch to a washable pad. I like one piece button down outfits for easy feed access and keeping it away from curious hands. But, that's hard the bigger they get (try L'oved baby clothes). My little one got over the hatred of tummy time eventually and now doesn't even notice the g-tube (even when I pulled it out this weekend). Good luck on this newest adventure - we're all behind you!JLSyrhttps://www.blogger.com/profile/03409199865463580122noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-26025427981254199802012-03-12T14:13:55.210-07:002012-03-12T14:13:55.210-07:00i can tell you that the reluctance to be on her tu...i can tell you that the reluctance to be on her tummy will pass! when my sweet frankie got his, he spent the first several weeks being very guarded about his tummy area, but now? he crawls off of furniture, climbs on everything and doesnt even notice the thing!! as for clothing,find someone to put a "buttonhole" on the sides of her dresses with their sewing machine, or just cut a small slit. my little guy just refuses to eat..he is deaf, very delayed and cannot figure out the chewing process.Motherofmanyhttps://www.blogger.com/profile/09207243655246868562noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-82124108864191956682012-03-11T11:07:32.041-07:002012-03-11T11:07:32.041-07:00omg look at that belly button! ridiculously cute :...omg look at that belly button! ridiculously cute :)Mistyhttps://www.blogger.com/profile/03827586682372627938noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-8668475470617092662012-03-10T21:56:05.056-08:002012-03-10T21:56:05.056-08:00I think you will really grow to like the mickey-bu...I think you will really grow to like the mickey-button. I used to work as a pediatric home health RN and it was my favorite form of the f-tube! I hope it starts to seem more normal for you! Your beautiful little girl and family are so inspiring!Lindseyhttps://www.blogger.com/profile/14111587875861437054noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-74592899450265821582012-03-10T19:40:43.435-08:002012-03-10T19:40:43.435-08:00I am a home health nurse that works with babies up...I am a home health nurse that works with babies up to children and teens and adults with different types of G and J-tubes. To help her adjust to tummy time, introduce the boppy again, it'll lift her up a bit and try her on her side too, so she's not directly on that button. It may be a little uncomfortable where the stoma is developing because right now it's kind of raw skin and the rubbing/pushing may be tender a little, or just unknown to her and new. I'm sure she'll adjust fast and it'll be a nice, easy way for you all to live your lives!Karenhttps://www.blogger.com/profile/18077369541371086696noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-25380764409850975702012-03-10T17:18:12.662-08:002012-03-10T17:18:12.662-08:00I don't know if you know about this lady who m...I don't know if you know about this lady who make stuff for g-tubes. Just thought I'd pass it along.<br /><br />http://www.facebook.com/pages/Tubie-Whoobies-G-tube-pads/132313983526046Amiehttps://www.blogger.com/profile/15100108107902043436noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-176276367812222142012-03-10T17:09:22.109-08:002012-03-10T17:09:22.109-08:00I work with a 6 year old girl who still has a g-tu...I work with a 6 year old girl who still has a g-tube. When she was younger her mother used to dress her in overalls most of the time because they allowed for easier access to the tube without rubbing against it. Hope this information helps you. You and your family are always in my prayers. Good luck.John Mhttps://www.blogger.com/profile/12099268257248172522noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-77164461637563462852012-03-10T16:51:31.378-08:002012-03-10T16:51:31.378-08:00That sounds way better than the ng tube. How long ...That sounds way better than the ng tube. How long will she have this new tube? When can she try to eat via mouth? So happy with her progress!Jen Isotalohttps://www.blogger.com/profile/10354975994059561857noreply@blogger.com