tag:blogger.com,1999:blog-906621410106004328.post3914144256131055486..comments2024-03-08T21:22:09.518-08:00Comments on Starring Scarlett: Round 2Brandi Weckshttp://www.blogger.com/profile/02163888241085994421noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-906621410106004328.post-48044425136772445702011-03-31T16:41:13.013-07:002011-03-31T16:41:13.013-07:00Brandi,
My heart goes out to you. I'm with ...Brandi, <br /> My heart goes out to you. I'm with another poster....with my oldest (now 3) I worried over all milestones. With my 7 mo old, I just don't care. They hit them when they hit them. I never even read them anymore.<br />As with what many others said, dear Scarlett is hitting other milestones....battling cancer. I cannot imagine a harder road. Thank God she is obviously a fighter! Stay strong and keep your chin up. You guys are doing a fantastic job! :)Anonymoushttps://www.blogger.com/profile/08593655050703019851noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-13509389299781383702011-03-31T14:20:19.986-07:002011-03-31T14:20:19.986-07:00I have been following your story from the beginnin...I have been following your story from the beginning, and want to say you have one AMAZING little girl. And have been following her stats and developmental milestones with such joy... in seeing how wonderful she is doing. My heart literly flips when I read about what she is up to now. <br />I have a 9 month old little girl- and I actually just got done weighing her with our home baby scale to compare it to her dr's scale for todays well check. And she topped out at 11 lbs 8 oz! She is a teenie tiny peanut just like her mommy and my whole side of the family. But it took 3 different drs to finally find someone who agreed with us. She doesnt need tests or feeding tubes. And we dont need the backlash from drs for family about "what the charts say" Its mom and dad that know their children best. All that matters is that they are healthy,happy and hitting all milestones. And with all your little butterfly has been through, she is doing awesome!<br />What helps with us too- my husband is a school psychologist, so he is well aware of the large gaps for milestones. I see all the posts too on the boards of running, babbling babies. Mine is no where near standing. But she sits like a perfect princess and she is attempting to crawl. Im in no rush. I know she will get there...I am just enjoying her every day for the sweet little girl she is.<br />Much luck to u...stay strong :)<br />Michelle.Anonymoushttps://www.blogger.com/profile/13598432313934982299noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-47173608120995873062011-03-30T12:33:02.946-07:002011-03-30T12:33:02.946-07:00Thank you so much for your honesty. It looks like...Thank you so much for your honesty. It looks like I'm not the only one whose heart you spoke to today. My son (our youngest of 3) is behind according to the 'milestone' charts on his gross motor skills. He is my first to be behind so it has been extremely stressful to me. He is a mostly 'perfectly healthy' little guy - the "mostly" being that he had allergies & food intolerance early on which has made him a tiny little thing. Trying to keep up with the milestones and hearing what other kids his age were doing was indeed stressing me out and causing me to worry probably unnecessarily. <br /><br />Keep your head up! She is such a little doll! Enjoy every day and try not to feel the pressure of what every other baby is doing!The Chung Familyhttps://www.blogger.com/profile/06136174794246875280noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-31578345338466366092011-03-29T08:41:36.326-07:002011-03-29T08:41:36.326-07:00I can only assume you mean Babycenter and let me t...I can only assume you mean Babycenter and let me tell you it is terrible. My kids are pretty advanced in relation to their real life friends but on babycenter they are so far behind. <br /><br />But it is good for something. I remember reading a post about Scarlett, one of the first when you were told to go home and enjoy what time you had left. I remember being so lividly mad at the doctor and prayed that you would get a second and third (if necessary) opinion. I check in here everyday and spread your story every where I go because it is so amazing. Your family is such an inspiration and you are all so strong.<br /><br />My prayers continue to go to you guys and I can't wait for the day when this is all just a distant memory and no one can believe that fiesty little Scarlett was ever sick.heatherhttps://www.blogger.com/profile/15098227602922124244noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-2250074533797410482011-03-29T06:37:43.447-07:002011-03-29T06:37:43.447-07:00http://community.babycenter.com/groups/a432295/del...http://community.babycenter.com/groups/a432295/delayed_darlings<br /><br />There is a group on babycenter called Delayed Darlings. It is am amazing group of parents that understand a lot of the things you are or will go through.lhttps://www.blogger.com/profile/15508532043345441985noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-36836342553537949262011-03-29T01:00:22.180-07:002011-03-29T01:00:22.180-07:00Praying for you, Scarlett & Chris. I am prayin...Praying for you, Scarlett & Chris. I am praying that you find peace in moments of chaos & strength in moments of weakness. I cannot imagine what you are feeling but I know that you are the strongest woman that I know. Please hang in there and know that God is with you & your family. Scarlett is a miracle & she will get there in the development department. She has come farther than should have been possible & she will continue to grow & thrive. Praying for smooth sailing with this next round of chemo & that she will suffer no side effects. She is a miracle! Praying for you.jenisbrodysmomhttps://www.blogger.com/profile/00254641627422611606noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-61296706974803751492011-03-28T21:07:37.330-07:002011-03-28T21:07:37.330-07:00There's nothing I can add that's not been ...There's nothing I can add that's not been said here but we follow this blog each week and remain blessed how God works. And to those who don't take moments each day to just soak in THOSE MOMENTS, try it and you can't help but love it. Our world moves too fast! Indeed, the tortoise has outsmarted the hare! God's continued blessings to you all....SLMhttps://www.blogger.com/profile/09121835605144328577noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-33089497930760729142011-03-28T20:10:43.471-07:002011-03-28T20:10:43.471-07:00As an Oct BBC mom, I feel intimidated by all those...As an Oct BBC mom, I feel intimidated by all those crazy posts!!!!! Scarlett is such a lovely fighter....all our babies should be so lucky to be as strong and loving as her. She's "off the charts" in my books....and we are thinking of you during Round 2 (I can hear the bell ringing for her to enter the ring....kick some cancer butt little girl!!!!)<br />- Hali and CordieHali Hamelhttps://www.blogger.com/profile/15594552759942820231noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-57708668485506607512011-03-28T18:37:25.981-07:002011-03-28T18:37:25.981-07:00I understand what you must be feeling, but Scarlet...I understand what you must be feeling, but Scarlett has reached so far beyond any milestone that any baby can reach. Those milestones are meaningless.... they really mean nothing bc all babies "even out" by age 2 or 3. (I am a teacher and I can assure you that kids who reach early milestones do not turn out to be the best or brightest!!) I think of Scarlett and how she has endured more doctor visits, procedures, operations, medications, hospitals, etc in her first months of life than I have in all of my years. I think to myself, what a strong, brave and special little girl. We could all learn from her...who cares about pincer grasp or rolling over! All of it happens when they need it to. All Scarlett needs to do right now is to heal, get better and stay well. I have read that when babies are working on their physical development, the mental slows and vice versa. God, to think of all that Scarlett is working on at all times, it amazing she can do anything besides sleep! Please dont feel bad...you have enough on your plate already. Scarlett is amazing and I think and pray for her everyday. I hope all went ok today.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-80484017424336493332011-03-28T16:43:35.446-07:002011-03-28T16:43:35.446-07:00when i see my daughter's cousins (she has one ...when i see my daughter's cousins (she has one 6 months older and the other a few months younger) do things she hasn't even done yet. And I wonder when she will. It used to upset me because I felt that it was my fault because I had her when I was 40. But now I tell myself, she'll do it on her own time and use what they can do as a marker of what to look forward to. And I watch how their moms handle it so I can go through those milestones with the least problems.Lady Niblet's Mamahttps://www.blogger.com/profile/11381390289822241381noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-13670790017242027972011-03-28T15:05:43.076-07:002011-03-28T15:05:43.076-07:00I feel those milestones and charts are for parents...I feel those milestones and charts are for parents to make sure their babies are "ordinary". We all know there is nothing ordinary about your precious little angel. She is nothing but EXTRAORDINARY!!!Jessicahttps://www.blogger.com/profile/15544406339715188901noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-90775252183575534152011-03-28T14:30:21.457-07:002011-03-28T14:30:21.457-07:00Perfectly said Brandi <3Perfectly said Brandi <3Marquez_Mamahttps://www.blogger.com/profile/11723302068748477143noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-52166743694600014262011-03-28T13:42:54.767-07:002011-03-28T13:42:54.767-07:00I couldn't agree with you more. I read those ...I couldn't agree with you more. I read those updates every week with my first child and I was so concerned if she wasn't doing what they said she should be. Now she's 3 and I don't even think about those things anymore. We spend so much time thinking about what they should do next that we miss out on them being a baby. I now have a 7 month old and I'm just trying to enjoy her time as a baby because now I know how fast it's going to go (and already has). Scarlett is such a strong baby to have gotten through what she has. I am so amazed by all of you. Scarlett has affected so many people and she has changed the way I think. I think about your family every day.<br />I will be praying that this round of chemo goes as well as it possibly can. Thank you so much for sharing your lives with us.<br />Marsha (BBC August 2010)Marshanoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-52361024117879007142011-03-28T13:13:56.150-07:002011-03-28T13:13:56.150-07:00Just so you know, BBC moms tend to have the most a...Just so you know, BBC moms tend to have the most advanced babies out there so don't let it get to you. I am so amazed by reading your blog at how well Scarlett is doing. I agree with what one person said, she has reached the greatest milestone...life! Good luck with chemo this week!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-33835765858408216872011-03-28T13:09:24.251-07:002011-03-28T13:09:24.251-07:00This is so well written I may even borrow your wor...This is so well written I may even borrow your words for a post you have inspired me to write. I am so proud of you for being such a strong mother and even when our kids seem to be "on track" they may even still be off from other kids their same age. It is a miracle that Scarlette is doing so well and I praise God every day that she is still in your arms smiling and growing. Hugs to you all and good luck today!In With the Lighthttps://www.blogger.com/profile/06291171798172522112noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-27577779793829545582011-03-28T12:49:19.879-07:002011-03-28T12:49:19.879-07:00What about that "milestone" that she was...What about that "milestone" that she wasn't supposed to be with us anymore?!?! She took that hurdle...and now is working on getting better. The other babies may have to "fight" a cold and have much more energy! Your little girl is fighting for her L I F E! As long there is progess in the long run...with a few step backs here and there...and some smiles and giggles for her Mama that is all she needs to do right now! She can deal with the easy stuff later...good luck with everything and can't to hear more!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-1538628557626189332011-03-28T12:13:23.863-07:002011-03-28T12:13:23.863-07:00Your baby girl has stages of her own.She's fig...Your baby girl has stages of her own.She's fight cancer and there is no other harder stage then that.She's a true miracle.God bless Her and your family always.<br /><br />Sujheiry BBC mommy from the PHB board.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-88177162388022548662011-03-28T12:04:28.071-07:002011-03-28T12:04:28.071-07:00A big "hello" from us here in NC to you ...A big "hello" from us here in NC to you in CA! Oh, the dreaded "what your child should be doing" charts. Drives me crazy! I just relish the moments that my baby is a baby because they change too quickly (just look at pictures from when they were born!) <br />I hope this second round of chemo is as easy as it possibly can be. We are rooting and thinking of you! All the best to Scarlett!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-31758036724706568362011-03-28T11:49:01.051-07:002011-03-28T11:49:01.051-07:00Scarlett has accomplished so much already and amaz...Scarlett has accomplished so much already and amazes our family with all that she has done! I can empathize that its hard to not only have a sick child, but to want them to be progressing the way the books say they "should". My son was born at 25 weeks and spent his first four months of life in the NICU. I went just about crazy trying to figure out what to tell people when they asked how old he was. Actual age or adjusted age or both? And forget the milestones...I learned that his fighting for his life and winning was all the proof that I needed that he can accompish anything. My miracle baby is now nine years old and nobody would ever know that he didn't roll over by the time he was six months old or that he didn't even say his first words until 18 months. But people are amazed when I tell him how premature he was. And I know, no matter what, that he's a fighter and can get through anything that life throws his way. One day you will say the same about Scarlett. She is a fighter and has already amazed so many people who follow her story through your blog. We are always keeping Scarlett and your family in our prayers. I hope she tolerates this next round of chemo well and it is easier that the last one. You and Chris are doing an excellent job. Hang in there, mamma! -Bonnie, BBC Oct 2010 mamaBonnienoreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-63431951475891812842011-03-28T11:42:04.042-07:002011-03-28T11:42:04.042-07:00This post really hit hard and has brought me to te...This post really hit hard and has brought me to tears. I am one of your fellow Oct BBC Moms. I actually suggested that you stop over there because you are so missed. I guess I look at Scarlett as an absolute miracle, I know you do too, that I did not think that it might hurt to see what other babies are doing now. Of course that has to be hard. I am so sorry. Scarlett completely amazes me, and so does her Mommy. I wish you and your beautiful baby all the very best.Michellehttps://www.blogger.com/profile/01655969247888886187noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-32084517487639747452011-03-28T10:50:26.413-07:002011-03-28T10:50:26.413-07:00What a beautifully written post - I am sending my ...What a beautifully written post - I am sending my thoughts and prayers from Arizona to you in California.Kristina and Aaronhttps://www.blogger.com/profile/09845238438009437827noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-20914780140502385832011-03-28T10:45:16.347-07:002011-03-28T10:45:16.347-07:00Praying for you. I know that God is in control. He...Praying for you. I know that God is in control. He will be there to give you comfort and will also give Scarlett the strength she needs to fight. Sometimes it feels like we will never make it to the mountain top and when it seems like we are about to fall, God is there to lift us. The great thing about coming out of the valley (trials, heartbreaks,etc.)we are in, is that we are climbing up to our mountain top. Always remember this: Don't tell how big your storm is, tell your storm how BIG YOUR(OUR) GOD IS!!!! That is why we can PRAISE him through our storms. Praying for your family!!! Scarlett is a true fighter!!!crystalhttps://www.blogger.com/profile/11376156495266001770noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-42630639201226627342011-03-28T09:24:54.807-07:002011-03-28T09:24:54.807-07:00Oh Brandi, I am sitting here with tears running do...Oh Brandi, I am sitting here with tears running down my face - half because I can only imagine what you are feeling and the other half because of all the other Mommy's comments. They are so right on! Scarlett is in a class of her own - with you and Chris right there with her. She is an amazing little miracle. Sending you a great big hug and lots of encouragement as you begin this next round. You are so entitled to your feelings.......thanks for sharing with us. I will say some extra prayers for your special family today! Lots of love from us!Sylviahttps://www.blogger.com/profile/01770725534552417722noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-23419785565834757042011-03-28T09:15:46.165-07:002011-03-28T09:15:46.165-07:00We have the best readers and commenters. Thanks, ...We have the best readers and commenters. Thanks, everyone. Your encouragement made me a little teary with this one. I appreciate it. We already got the call, so we're going in early this afternoon.Brandi Weckshttps://www.blogger.com/profile/02163888241085994421noreply@blogger.comtag:blogger.com,1999:blog-906621410106004328.post-34048694978697887902011-03-28T08:50:41.508-07:002011-03-28T08:50:41.508-07:00We wish you so much love this week with the next r...We wish you so much love this week with the next round of chemo. As a mother of a 7 month old precious baby boy, I have come realize that it is ALL about the weekly milestones that will drive a mother crazy. I get the same questions all the time..is he walking, crawling, talking...and all I want to say is "Why, yes he is-all of it and he will start driving tomorrow and college in a month...wow is your baby there yet?" Babies aren’t allowed to be babies anymore and it is hard. But as a mom we can see that they get every moment out of every second and that they do hit the milestones when they are ready and celebrate them and remember then either as a pic in our head, on video or oh a camera. You are doing the most amazing job as a mother. Scarlett is triumphing along and for everything that she has gone thru is doing remarkable! She is one little fighter and she should be the poster child of what our children should aspire to with all her love, laughter, and strength. I know she has changed me just by following yours and her story. Its hard but you, Scarlett and Chris are inspiring! Sending love and prayers from the Cozza's in CTAnonymousnoreply@blogger.com