|Digging in the sand at Santa Cruz|
She loves to play with cars, trucks and trains - anything with wheels. She pushes them all over the house. She wants to move - swing, ride, walk, crawl, anything to not be still. She has become quite a daredevil, climbing on to chairs and tables, even dragging her toys around to use as step stools. When she is on the move, she has no fear, which causes her knees and arms to be very bruised, toes blistered and gave her a lovely skinned nose last week. She is also learning to give hugs and be very cuddly, which we all love!
|Tolerating swimming lessons with Mommy|
|Snuggling with Uncle Danny|
Unfortunately, it also comes with a downside - the girl is INSISTENT. If she wants it, she wants it NOW. She has a breakdown nearly every day about wanting to go out to her swing. And boy, can she throw a fit. She has mastered the head-throwing, screaming, kicking and boneless spaghetti legs that toddlers are known for. We thought we might escape the tantrum 2's, but just like everything else, she is making sure she gets her chance.
We've been working a lot in PT on walking. She has her walker that she uses almost every day. We have been trying to take her places where it is safe for her to walk around - a handicap-accessible playground, parks, anywhere where she can have some freedom to explore.
We still struggle with eating. It is a battle every day. She likes to eat, likes to play with food, but she struggles to swallow and cannot ingest enough. We have decided this is a battle we are not going to fight until after chemo, when hopefully her appetite and taste come back. Her g-tube works great for getting in the nutrition she needs for now. Until then, we are working on teacher her not throwing the requested cheerios on the floor, and swallowing anything we can get her to take, even if it is only ice cream, whipped cream or pudding.
We are nearing the end of her current treatment. By mid-August, the plan is to finish chemo and be back on the road to remission. She has an MRI at the end of the month, which will hopefully show nothing new. There are follow up appointments with her surgeon, where we are quite sure we will be discussing her next phases of reconstructive surgery - her skull has yet to heal from the original surgeries more than two years ago. She will be seeing the ophthalmologist and GI doctors soon too, in a effort to continue investigating her vision and swallowing struggles.
Today we are headed to our local Relay For Life, where Scarlett can show everyone a thing or two about what it means to survive cancer!
I've said it and I'll say it again: She is so CUTE!!! Love, love, love her! I hope that this stage of chemo ends soon and no more of this EVER for Scarlett! Wish you all the best! Thanks for sharing her videos. Makes my day.
Scarlett is sooooooo adorable!!! I love watching her sign and dance. :) Thank you for sharing these videos of your precious daughter.
Praying and praying the cancer is GONE and these present obstacles will be overcome soon.
Don't worry about the food. My girl was the same! I'd get excited if she ate ice cream lol.... Some people judged but who cares. I'm happy to report, once she started pre school, she started eating better!
I haven't checked out this blog in a while. Not only is Scarlett an amazing young lady, you are amazing parents. God is using all of you to bless each other's lives. Thank you for sharing so much of yourselves with us!
I haven't stopped by in a while and I'm so excited to read that Scarlett is doing so well. (My son is 5 days younger; I'm from the BBC birth board back in the day.) I wanted to suggest, in case you haven't tried them- pants from Children's Place! Or really any adjustable waist. My son is a few pounds heavier and a few inches taller, but has the same problem- too tall for the right weight size, and anything long enough falls right off his waist. So I only buy adjustable-waist pants now. Maybe that can help? I always get them at Once Upon a Child b/c they are pricey when brand-new. Anyway, glad little miss is reaching the end of her chemo, that is such awesome news!
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