Happy 2013 everyone! We're just getting back into the swing of things after the holidays. We had a nice visit with Chris' family, and then a fun little New Year's Eve of fondue and wine with friends and their 2.5 year old twins (making me appreciate more and more my one crawling kid!) Now I am back to thinking about school, getting my classroom ready once again (it needed some TLC after my distraction before the break); it's also time to get back to the business of Scarlett's new treatment.
Today, we had a follow-up appointment with her neurosurgeon. He says her incisions are healing well, and that she is safe to start chemo from his perspective. He will see her in a few weeks when the healing is further along - scabs should be falling off (lovely) and skin closing - to make sure she is still infection-free once she begins chemo.
He confirmed that the tumor pathology came back as recurrent glioblastoma. No ifs, and or buts. Her oncologist has yet to get a sample for second pathology, so there are still some oncology-specific questions awaiting answers, but we know what we are dealing with. However, he also showed us the post-operative MRI images to show us that the tumor, along with a margin of additional tissue for good measure, was completely removed.
Tomorrow, she will have another MRI at LPCH; it was scheduled months ago, and we all agreed it was not a bad idea to get some pictures of what is happening in her head before starting chemo. We hope to see no additional tumor growth from the last three weeks. It is the first time her new port will be accessed. I hope she is as tolerant of the numbing cream, plastic wrap and giant needle as she was before...
The plan is still to begin chemo on January 11. Scarlett and I will both begin school again on Monday, so it is back to the grind for us all. We will once again be trying to find a new normal, a way to get through this next phase with our sanity intact.
Two years ago this week, the first gigantic tumor was removed in two 12-hour surgeries that nearly killed Scarlett. She was only 11 weeks old...I know I posted these pictures a few weeks ago, but I keep going back to them. I remember so vividly what it was like in those first awful weeks...we have come so far.