My nap time project today was to add a page to the blog to share the gear and tutorials I have used. At the top of the page, you can see the ADAPTIVE GEAR tab, where I have linked a bunch of things we have seen, used and liked over the last year to accommodate Scarlett's special equipment. As I continue to learn more, I will add more.
So far, I have included hearing aid stuff (like the hot pink covers we use), g-tube stuff (like the tutorial for adding a nice hole to onesies, which I will write about soon!), the hospital gown tutorial I used for Valentine's Day, and more. I have also included some of the every day gear we use, like Scarlett's car seat, which we chose specifically for her needs after MONTHS of research.
I am currently on the hunt for books about doctors, hospitals, and specifically about cancer, for young children. As Scarlett continues to grow, doctors will be a constant part of her life, and I realized we have NO books about it in our extensive kid book collection (that's what happens when you have a teacher mom and librarian grandma!) I'm hoping to find things that talk about childhood cancer patients, rather than children seeing adults go through treatment. I'll add to the list if I find anything!
4 comments:
What a great resource! Thanks for putting it all in one spot. Those items are awesome, especially the handmade ones; Scarlett and other kids with parents like you and the creators of these products are so very lucky to have such amazing caretakers. Seriously.
I saw these the other day, and your post tonight reminded me of them! Just in case you've not seen it yet, I think they would be adorable for little Scarlett! Tummy tunnels, and here is their website. Also, I'm not a g-tube mom, nor a part of this company. But my little one has Mito and a lot of our kids have g-tubes. Someone just shared the link in our group, and I thought I'd share it with you! http://www.tummytunnels.com/store
These are probably for a few years down the road:
I Can Too!Girls: Cancer Kids Can Too! Books
Chemo Girl: Saving the World One Treatment at a Time
American Cancer Society has a book for kids with cancer. And I think it is free. Call their 800# and someone can help you.
Great news about the tumor and last chemo treatment. Prayers that her recovery continues.
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