|Scarlett and Cosmo were entertained by the street resurfacing this week
She's turning into a two-year-old before our eyes, insisting on more independence, but needing comforting and reassurance from us as well. I feel like she is often frustrated by her baby body wanting to do big-girl things, wanting to communicate but not being able to find the words (and not signing at all yet). As she's getting bigger and older, her delays are becoming more apparent and more difficult to accomodate with standard baby gear. She's working hard to stand and walk, but she's outgrown most baby walkers, so her physical therapist got her a mini gait trainer to allow her to practice and strengthen her legs and hips (as she tends to lean forward rather than stand straight). She's started a sneaky little game of pinching, then laughing when we say "no!" or "stop!". . . not fun at all, and something we are working hard to redirect. She's getting trickier, too: tonight, she was playing with the phone in my lap. I grabbed it and hit "END" when I heard dialing - she had hit the speed-dial for 911! I thought I caught it, but when a police officer knocked a few minutes later, I was proven wrong. We all laughed, assured him it was just our sneaky baby, and went back to her bath. I hope all future encounters with police on her behalf are so simple!
The older she gets, the more pronounced her delays appear, especially when we see what other "typical" kids are doing at her age. She's still very much a baby in a lot of ways; all of the most recent rounds of testing put her at about 8-10 months developmentally (areas differ - lower on gross motor and receptive language, higher on fine motor and expressive language). She seems to be moving in slow motion, both developmentally and physically - she's taking her time, her brain acclimating to every stage for a while before moving on. Everyone is still very optimistic about her long-term prognosis, but we often feel bogged down in the daily hyper-awareness of her deficits. Despite her frustration and ours, we continue to press ahead. She will begin preschool (at her current school for kids with hearing loss) 4 days per week in just a few weeks.
It has been a year and a half since the tumor was removed. So much has happened since then, and we are so glad to be where we are versus where we could have been.