Thursday, May 3, 2012

Scarlett's Brain Tumor Buddies

Since Scarlett was diagnosed, we have met many more children with similar stories.  Some have persevered and are years out of treatment.  Some are still in the fight.  Sadly, some were lost to this terrible disease.  In honor of Brain Tumor Awareness Month, I wanted to share some of the other stories we have been following.

Congenital Glioblastoma Multiforme (the same diagnosis as Scarlett)
- Connor (5 years old)
- George (5 years old)
- Abby (5 years old)
- Riley (3.5 years old)
- Faylynn (3.5 years)
- Lily (3 years old)
- Lilee-Jean (1.5 years old)
 Thanks to the internet, Facebook and blogs, we have been able to find 12 total children who have survived congenital GBM.

Other Tumors
- Phoebe (2 years old)
- Gaven (Almost 1 year old)
- Nicky (2.5 years old)
- Zac (almost 2 years old)
- Keegan (Forever 2)
- Bree (Forever 3)
- Jessie (Forever 12)
- Talon (Forever 1.5)

These are just the kids I have come across.  There are thousands more.  Their stories all begin the same - they were all just normal kids, and then they weren't.  Every single on of them has been through surgery and chemotherapy.  Some have had radiation.  Of those who have completed treatment, most have ongoing therapy needs.  Some have frequent seizures, and some are in wheelchairs.  

Four of these children have left us far too soon.  Keegan, Bree, Jessie and Talon all passed away within the last 6 months.  

This is not right.  Please help us bring awareness, support, and research funding to brain tumors.

1 comment:

Jeremy and Kristin Bowman said...

Have you heard of Matthew?