Wednesday, May 9, 2012
We had a long, tiring night in the PICU. Action never ceases, no matter who is trying to sleep. Beeping, whirring, talking and crying cycled through the floor, but luckily Scarlett slept through most of it thanks to some heavy narcotics. Many of the nurses remember her from our month-long stay when her tumor was removed, so they keep coming by to check in. She's facing a few challenges right now. First, swelling has taken over her face. Hr eyelids are purple and have grown to cover her lashes; she hasn't been able to open her eyes all day. Sometimes we can tell she is awake, so we talk to her and try to give her our fingers to grab. Every once in a while a little tear slips out - heart-breaking! She is also having tummy troubles. She looked like was doing so well that they began giving her some Pedialyte through her g-tube. This resulted in a lot of vomit. She hasn't been able to keep anything down yet, so we have increased her anti-nausea meds. Since vomiting can be a sign that her inter-cranial pressure is high, she will be getting a quick MRI scan this afternoon to monitor the fluid build-up in her brain. Until then, we have her g-tube venting anything nasty so it doesn't have to go through her mouth (a strangely convenient aspect of the tube - it's as much a outlet and an inlet for the stomach...) Overall, everyone is very happy with how she is doing. It's hard to see her to swollen and zonked out on medicine, but we know that this is just a short phase to live through. She has already had an OT evaluation and will also see PT and maybe speech while she is here. For the next few days, we will be watching carefully and making sure that she is as comfortable as possible.