Scarlett is out of surgery, headed to the PICU for recovery. We just spoke with the surgeon. Here's what we know right now:
Getting an arterial IV line in her was very difficult, so it took an additional few hours.
The entire growth was removed, including some of the adjoining tissue that might harbor rogue cells.
The pathologist looked at a sample. The initial impression is that we are again looking at glioblastoma multiforme (GBM). Official diagnosis results will come in the next few days, but it is definitely some kind of tumor. I have some particularly colorful words I could add here, but I'll keep it PG-rated for now.
While they had her opened up, they used a mesh to help repair some of the unhealed soft spots on her skull. This will hopefully help them heal stronger.
They expect her to be ready to go home Sunday or Monday.
Her doctors at LPCH at Stanford are being informed, as well as samples sent soon to start developing their plan. Her case will also be presented this Friday to a doctor we met at the Pablove conference in LA last month, who consults at Children's Oakland. Basically, everyone is on it, and we should have a plan (or likely, a choice of plans...) soon.
We are pretty tired after waking up at 4:30am and being anxious all day. I will be staying the night in the PICU tonight while Chris goes home to sleep. I am hoping we can keep her more comfortable with pain medication this time.
Thanks for checking in on us. I'll continue to update as we learn more about this new phase.