I'm sorry it's been a few days. I got a few messages wondering what is going on. I've just been trying to keep up with everything, and blogging went to the back burner for a few days. No big changes or emergencies, just busy and not much to tell. Then today, I had a lovely day at the spa for a massage, facial, manicure and pedicure. It's been months since I did anything relaxing like that. Plus, I needed a break in a big way. Chris piled Valentine's Day, my birthday, and Mother's Day (and probably our anniversary) into one big day. After my afternoon of pampering and quiet, we went to the movies to see Bridesmaids, which was pretty hilarious (despite the people behind us who repeated nearly every funny line or action...I think a blind person could have enjoyed the movie from their play-by-plays!) So, now that I've had a break, I can write a bit.
Scarlett and momma have had a hard week. She has had trouble eating, and not really keeping down much that she will eat, so we are supplementing with the NG pump much more. I'm sad and frustrated to have her hooked up to something all day, but it seems to help, so we do it. I'm also struggling with how much medication she is taking, and how sleepy the medicine makes her. I feel like she can't make progress or learn anything about the world when she is asleep, but sleeping lets her rest and feel better to be ready for those things another day. The teacher in me wants to keep her moving, but she is not ready. The tired grouch in me wants her to sleep so I can rest. The mother in me just wants her to feel better. I just keep reminding myself (or having the doctors remind me repeatedly) that this is not forever...it will get easier.
She is neutropenic (low white blood cell count) and scheduled for a blood transfusion for Monday, so we'll be staying in most of the weekend to be safe.