I couldn't sleep, so I'm up at 5:30am after an hour of tossing and turning while Chris and Scarlett (and Cosmo and the cats...) sleep. As I was wandering the internet, I found out that there has been a scam involving someone posing as the mother of a cancer kid and taking money from people. I am so sorry people were hurt. I know people are skeptical, as they should be, so I just want to confirm that we use everything we have been given for Scarlett; we have a trust account for expenses related to her care; we save everything - every card, every kid-drawn note (we just got a binder-full of pictures and letters from my first graders), every gift for her; and more than anything, we are just very grateful and overwhelmed by the generosity that has been shown to us in the last few months. I am not sure where we would be without the help of our family, friends and many, many strangers who have been touched by Scarlett's story.
Yesterday, Auntie Lindi came with Scarlett and me to the doctor. We go twice a week at least, and Chris often has to work, so it was great to have someone to help me haul the stroller and gear around. I am still learning to navigate the world with a stroller; it is quite a challenge sometimes, between things falling out of the basket, finding elevators rather than stairs or escalators, squeezing between furniture in a store or waiting room, all while trying not to clip the heels of someone in front of me. And somehow, I always end up holding the baby and filling the stroller full of stuff...
At the appointment, we got good news and bad news (as we usually do). Good news: Despite the recent gastrointestinal pyrotechnics, she actually GAINED a tiny bit of weight. This means no NG for at least a few weeks, since the nausea is wearing off and her appetite is recovering. Woo!
Bad news: She needs a blood transfusion. This is expected, since the chemo is doing its job of killing off blood cells. All three of her blood counts (red cells, platelets and white cells) are very low, so we are going back today for red cells and platelets (her white cells have to build up on their own). It's not really a big deal, in the grand scheme of things; she has had blood transfusions before (after surgery #1 and after RSV); it does, however, take 5+ hours to get the blood into her. So, a long day at the hospital is ahead. It was good to see that, even though her counts were very low, the doctor nor I thought she looked very sick - she is not too pale, still gets rosy cheeks, and has good circulation response in her fingers and toes.
She has been such a trooper for this first, very long and drawn out round of chemo. Luckily, she gets one more week of a break from the heavy drugs to let her body recuperate. We are planning to be readmitted to the hospital sometime after the 27th...it all depends on her blood counts, since we can't start until she is back to full power.