Scarlett is finally feeling better. She has been nauseated and grumpy most of the time since chemo on Friday. I can't blame her - it's got to be uncomfortable. But today is the first that she has not thrown up at all, and her appetite seems to be returning. Good girl!
You were all right - the shots have been easier since the first day, and are already no big deal.
Yesterday we had some good and bad news at her appointment. Her blood counts are good, and her body is recovering from the chemo. Good! They don't want her admitted over the weekend, since her doctors are not around, so weekday admissions whenever possible. Good! Her incisions are all healing well, and her head circumference is back to normal (for her) after the shunt placement. Good!
But: She is not gaining weight. BAD. Her appetite is very low (though returning) and that means she doesn't gain weight. She is already very, very small for her age (just over 12 pounds at almost 5 months; about the 3rd percentile), especially for a full-term baby. Babies can't really be convinced to eat when they don't want to; when we try to feed her, she just sticks her tongue out and refuses to suck. So, if she loses any weight at all, she will have an NG tube placed for the remainder of chemo. She had this before and after surgery - a tube going through her nose into her stomach. This allows us to feed her when she doesn't feel like eating.
While we knew this could happen, I didn't realize it would be so soon. It could happen Friday or next week; probably within the next few weeks. It's a minor complication for Scarlett; she will want to tug on it, like she does with all the monitoring lines in the hospital, which could displace it. It's more psychological and emotional for me - she will have a tube taped to her face for the next few months. No hiding it in pictures like her surgery scars, no covering it with a cute hat. When we go out, other people will not see her bright blue eyes or her pink cheeks or her gummy lopsided smile first. It will be a part of her history, so we just move forward with it, but it is not a great development.
THANK YOU to the Garretts for pizza and LeAnn for lasagna!