She passed 13 pounds! This is awesome news! She's feeling good and is on NO medication today for the first time in months. It's short lived, as she needs some antibiotics over the weekend, but it was a great feeling to not have to give her any medicine. They are very happy with her movement right now - she is grabbing her hands in the middle of her chest, reaching for toys and putting things in her mouth.
All is clear to begin her next cycle of chemo on Monday. This chemo takes a long time to clear her system, but does not cause too many bad side effects (or at least it did not last time - this can change with continued doses). Unfortunately, she will get the NG tube while in the hospital. It is a precautionary measure to ensure she does not lose any more weight in this cycle. While she is gaining, she is not really eating as much as she should. Our doctors say they have never had a baby get though this chemo without a tube, so it it inevitable to them. We are doing it now, while she feels good, rather than waiting until she is already sick to force feed her. She will still be able to eat as much as she wants by mouth, but we will supplement with her recommended amount of calories into the tube. I will begin to learn the process of inserting the tube through her nose so that if she pulls it out (or it comes up when she throws up...) I can reinsert it without going to the doctor. Another Mom Up moment, I'm sure.
She will also see a neuropsychologist next week, which is a new addition to her medical team. This is part of the study protocol, and I am very interested to see how and what they can learn about her at this age.
We're ready for the weekend, and hoping we can get together with some friends! I am also determined to get her picture taken tomorrow; we didn't get it done yet this week!
Thanks to Tammy and Scott, who just dropped of enchiladas!