Scarlett was admitted yesterday for chemo. She is coming through this round really well so far. She doesn't seem to feel sick and is happy to play with her fingers, stick her hand in her mouth and look at herself in the mirror. Her doctors changed her chemo plan to help preserve her remaining hearing, and the replacement drug seems to be much, MUCH easier on her. While I am glad she feels better this time around, I hope that it is just as effective as the last drug. I would rather have her feeling sick for a few days, and even deaf, than have the tumor grow back. The doctors are confidant, so I will try to be.
We only had two days at home, but it was not so traumatizing to come back in because it was scheduled. I always do better when there is a plan, and this particular plan is working out well. Now that we have been in and out so many times, we know exactly what to bring, what to expect, and how to settle in quickly. I feel so comfortable walking around the hospital, going to get coffee in my pajamas, where the cafeteria barista knows my order, the security guards know where I am going and I see nurses and hospital staff we have worked with all over. It's a very strange version of a hotel where Scarlett is the VIP and I am her manager.
If she continues to do as well as she has been, we will be discharged tomorrow evening. Then, if we are lucky, we will have two whole weeks of freedom!! Fingers crossed, knock on wood!
13 comments:
Keeping my fingers crossed that you guys get to spend a whole two weeks together at home! ...and hope Chris doesn't have to work too much during that two week period!
So nice to hear that the new drug seems to be easier on Scarlett! As you said...I also hope that it is just as effective as the other drug.
My son and I will continue saying our nightly prayers for Scarlett and your family. I think of you guys throughout the day.
Keeping our fingers and toes crossed that this round of chemo continues to seem less harsh than the other rounds and that you guys get TWO full weeks at home between the next round!
Fingers are crossed!! So happy to hear that she is feeling well :o).
What a FANTASTIC Mothers Day gift THAT would be!! I hope it works out.
Fingers crossed for 2 weeks of freedom! I'm so glad to hear that she is feeling well <3
i will keep my fingers and toes crossed for you guys! that would be so great if you could stay home for that long.
So very happy to read that she is feeling good! YAY! Go Scarlett. I think that you should trust the doctors about the meds, I am sure that they know what they are talking about. I am praying that you get to go home tomorrow and that you get to stay there, comfy and relaxed for the next two weeks!
so exciting hoping and praying u get to have 2 weeks at home!! so happy she is feeling well keep up the good work scarlett,momma, and daddy!
So glad to hear that she is doing well. I'm praying that this new medicine works wonders for her. I really hope you all get a nice 2 week break!
Glad you are all in good spirits and Scarlett is feeling good, my fingers and toes are crossed that y'all get to go home for a good amount of time :) much love and strength from Austin TX
Keeping fingers crossed, sending prayers and positive thoughts that things go as you hope and you are able to have a break from the hospital! I am so glad to hear that Scarlett is doing well with the new chemo. I hope you have a wonderful first Mother's Day :)
Happy Mother's Day, Brandi! I'm praying you and Chris spend it at home with Scarlett. Thank you for being such an inspirational Mom!!
Praying for you! Go Scarlett!!!
Praying for you and Scarlett! She is such a trooper and you and Chris are so supportive! The updates are always appreciated, especially the information on the tumor and her medical conditions. I hope you get to enjoy a couple weeks at home just spending time as a family!
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