Not much else to do, so we are sitting in the hospital room with family. We are talking about all kinds of silly things, like what to eat for Christmas Eve, the evil of credit cards, even a funny newspaper article about weather in Southern California. We handed Scarlett to the surgery nurse at 7:30 this morning, and are now waiting for our hospital pager to buzz. She was off of all the monitors and IV, so I got to carry her to the surgery check in instead of having her ride in the giant metal crib.
The hospital staff has been absolutely fantastic. LPCH is a wonderful place to be when dealing with something like this. They are knowledgable, understanding and kind. It is such a different expereince than when I was in the hospital for Scarlett's birth. The nurses here are wonderful and patient with us and Scarlett. We have already met with the social worker who works exclusively with neurosurgery patients' families.
A lot of people have suggested we contact St. Jude Children's Research Hospital. We asked our doctors about getting a second opinion from the St. Jude doctors; they said they would absolutely do so after the biopsy results. The neuro-oncologist also explained that they work in concert with St. Jude doctors for research. There are such small numbers of patients with these types of tumors that the hospitals much work together to get valid sample sizes for research. We feel confidant that they will do whatever needs to done to help our little girl.
Biopsy results won't be in until next week. We will see what comes next as soon as the doctor is ready to talk to us after surgery.