First, we are astounded at the response to this blog and our daughter's case. In just two days, we have had over 3,000 readers all over the world. It means a lot to us that people are keeping us in mind.
The doctors are performing a biopsy tomorrow morning at 7:30am (PST). To our relief, they have decided not to do any painful pre-operative procedures until Scarlett is under anesthesia. We want her in as little pain as possible, and watching nurses repeatedly try to insert an IV into my baby has worn me down. Scarlett is a "hard stick", meaning that her veins are very small and hard to manage. This is just like her momma, Grandma and Auntie, so no surprise there. Today, they had three different teams of nurses attempt to get the IV back in (it slipped out this morning), even using ultrasound to try to nail it down.
We had to sign our consent for the biopsy procedure. This included a conversation with the resident neurosurgeon regarding all possible risks. There are always risks of bleeding and infection in these types of procedures. There would be some risk of brain damage, though they do not believe they will ever have to touch her brain; the tumor is large enough that it is easy to access.
We signed our consent for "stereotactic left frontal biopsy for brain mass under image guidance." Basically, they will use the MRI images to guide the extraction of a small piece of tissue from just under the skull. It involves just a small incision in the skin, a small hole in the skull and a few stitches to close up. We were sure to ask what we should expect her to look like when she comes back to us. They told us they should only need a small bandage to cover the stiches. I had images of her head mummified by gauze.
Results will take 3-5 days. We do not expect to hear much from the doctors until midweek after Christmas. We will be home with our families, trying to enjoy any last "normal" days with Scarlett. Even then, a home care nurse is being assigned to us.
We are glad she is currently unattached to any monitors or IV, and just taking oral medications. We are going to give her a bath and hopefully put her to bed for a good night's sleep.