We're getting back into the swing of things. Chris went back to work today for the first time in 6 weeks. Scarlett is napping in her bassinet. I have showered, eaten and done some dishes. I even got Scarlett to nurse for a little while this morning. It's like nothing ever happened...
Yesterday was supposed to be my first day back to work after maternity leave. I can't believe how much has happened since I last worked. I took two weeks off before Scarlett was born; my last day was the day my sister delivered Zoey. She was due to be born this week. Thank goodness for my substitute teacher and my wonderful teaching team; my class is doing well and making good progress without me.
Our neuro-oncology appointment was rescheduled, so we go to see them tomorrow. After this appointment, we should have a plan for how to proceed with chemo in the next few weeks. Then Thursday, we revisit the neurosurgery team for another quick MRI and a follow-up. They keep calling to check on us, waiting to hear that Scarlett is struggling, hearing every time that she is doing well. Hopefully, this MRI still shows no need for a shunt.
We also get to downgrade Scarlett's medicine today. Now she takes anti-seizure meds twice a day and a steroid just once a day. The steroid will wean off in the next week, but she will likely be on some kind of anti-seizure medication for a long time. She's learning to take the medication more easily, even though it still makes her gag sometimes. Poor baby!