Scarlett Grace is 6 months old today! It has been a long, rough road for her but she has persevered. We are so grateful for every day we have with her.
She has made some great progress in the last month, and we hope this infection does not cause too much of a setback. Her eyes are much more centered and rarely drift to the left anymore. She is tracking side to side better, and is beginning to do more up and down. She insists on being held upright so she can look around. She turns her head side-to-side and is working on holding it upright. She reaches for toys and momma's fingers and face. Her favorite toys make noise and have lights. She grabs her hands at the midline and can stuff almost her whole hand in her mouth.
She is feeling better still today. Still no fevers, so it seems the antibiotics have finally taken effect. Our goal is to get her up out of bed more and to do the majority of feeding by mouth instead of NG. It is challenging because she has many wires and tubes connected right now, which is uncomfortable for her and us. However, we are doing our best to keep her moving and entertain her.
41.5 cm Head Circumference (back to normal)
0 Shoe Size (she has tiny feet!)
11 Current Medications
4 Months since diagnosis
7 Surgeries (and one more on the horizon)
69 Days in Hospital10 Rounds of Chemo Left
Fingers crossed that her next 6 months is easier than the first!