Today is my 28th birthday. I know I'm still pretty young to most people, but I feel like the oldest 28 year old on earth. I usually love my birthday, but this year is not going to be much fun. We're still in the hospital, and there is no plan for discharge in the next few days. I did get out last night when my parents stayed with Scarlett and Chris, Lindi, my grandma and I went to dinner at the Cheesecake Factory a few minutes away. It was great to get out again, but I missed Scarlett and it felt strange to try to have fun while she was hooked up to an IV in the hospital. Chris has some fun plans for me once we are home.
Last year on my birthday, I felt like my life was hectic; I was a few months pregnant, Chris was finally hired to a job after months, and my new job was fun but exhausting and already headed for pink slip. This year, things are still chaotic, but there is no end in sight, and I can't even predict what might happen next. I hope that next year, I can look back and think about how far we have come, and have it be behind us.
For now, we just deal with today. They check her levels with a blood test each afternoon. They dropped off quickly at first, but now are slowly tapering off. We measure in hours.
Hour 1 - High Dose Methotrexate (HDMTX) administered
Hour 2 - Remainder of Methotrexate (MTX) begun
Hour 23 - Check blood levels
Hour 24 - MTX ended
Hour 42 - MTX level was 1.6
Hour 66 - .26
Hour 90 - .11
Hour 114 - .05
Hour 138 - .04
Last time, she had to clear below .05. This time, I am not sure why we have to go lower, but I heard below .02. It could still takes a few days to reach that level.
The concern in that the fluid in her head is holding the chemo longer than it should, and it is toxic to her kidneys and bladder, so she needs high amounts of IV fluids and a medication to protect her organs as long as the chemo is measurable in her system. We are hoping to start her next chemo tomorrow morning to keep moving ahead, but the protocol may not allow it to begin until MTX clears.
Over the weekend, all of our regular doctors are off, so I didn't get much chance to ask what the plan is now that her methotrexate is clearing so slowly. When I see them today, I want to know if this is the expected routine for the next two cycles; I need to plan ahead if we will be in the hospital for 2+ weeks each month rather than a few days.