It's been a tough few days. Scarlett seemed to be doing really well on Friday when we got discharged. By that night, as we were getting ready for bed, she lost her good feeling. She was sick over and over again. I was on the phone with the on-call oncology doctor to figure out how to re-dose medication she threw up a few times, since every time we got some in, it came right back out. Once she started, she couldn't stop.
We decided to hook her up to the feeding pump for a slow drip of Pedialyte overnight to rehydrate her. Once she is dehydrated, she spirals down very quickly, but it seems that a steady stream of fluid brings her back. I have also experimented with her medication schedule and have a better idea of how to time all the anti-emetics to keep her on track. She has 8 daily medications to balance side effects, deficiencies and immunities.
Now, after a few days of slow improvement, she had a full 4 ounce bottle with no problem. I don't think we will rush to remove the tube, but I am optimistic that we have turned the corner on this round. She is perking up, had a bath and is now calling me to rescue her from her crib after a nap.