We had an easy night. Scarlett is sleeping and eating well. She has only needed Tylenol for some minor discomfort. Because of the complication with her bladder, she has a foley catheter to drain urine. We have to be extra careful not to yank it or catch it on anything, but it is not too bad. I am hearing we might be discharged for Easter...fingers crossed!
I wanted to sing the praises of one of our hospital support staff - Analisa, our social worker. She is the sweetest, most helpful person. She comes to visit when she can, and it seems she has a knack for coming just exactly when I need someone to talk to, whether it is about problems with coordinating services, hospital living or adjusting to our new life with Scarlett. Today, when I went to get coffee in the cafeteria, I ran into her in the hallway just as I was anxious about MI results; she is contacting the right doctors to make sure they come talk to us. She recognizes Scarlett's voice (there aren't too many babies in neuro-oncology), so if she hears her making noise in the clinic or in a room, she pops her head in. She listens and tries to help bridge the gap between all the different departments and us. She has been a huge help in getting some financial assistance arranged, and explaining what to expect and what is available. I so appreciate everything she does for us, and I am so glad we get to have her as part of Scarlett's hospital team. THANK YOU!!!
By the way, if anyone has any good ideas on how to thanks hospital staff (besides the Girl Scout cookies my mom supplies us with) I would love some ideas! :-)