I feel obligated to keep you all updated, as you have been riding this rollercoaster with us. Daddy is rocking Scarlett, so I have a minute to type.
Tomorrow will be an early morning. The anesthesiologist will come in around 5 to discuss and for us to sign consent. Scarlett will get a final bath to make sure she is squeaky clean. They will disconnect all the EEG monitoring electrodes.
Surgery is scheduled to begin at 8am PST. We will walk her down shortly before that to hand her off to the surgeons. They tell us it will take a while to get started, but we will get a call once they begin, and then no longer than every two hours. They hope to be done before midnight, but will stop then either way.
Technically, the procedure is called a craniotomy, which means the skull will be opened. The incision will be a large crescent over her left ear. If she does not tolerate anesthesia well, or has too much blood loss, they will stop and not go back in for a few more days. If they have to stop, they will leave the bone off, wrapped in the freezer, and loosely cover the opening. This was the most sickly fascination fact of the day (and sorry for those of you who didn't want to know that, but we did).
I was sure to ask what she would look like when I see her next. She will have another mummy head wrap and a breathing tube, as well as a drainage tube from the top of her head.
We heard a lot of information today. Some of it was not good news...neurological symptoms are emerging. She does not visually track anymore. She does not move her head much, and can no longer lift it. Her reflexes are uneven and somewhat abnormal. My heart broke a little when they told us her optic nerves maybe damaged and they don't know how much she is seeing. I had been worried about her eyes for days, but was told they checked out fine. Things change fast.
It's been a while since I started writing this post. Chris and I have been taking turns rocking and feeding and reading and snuggling. She's fast asleep now, and we've hit the mark where she can't eat anything else. The rest of the night, we hope she get some rest and we will try to do the same. I'll post updates if and when I can tomorrow, but I know the prayers and positive thoughts will be floating our way, so we thank you.