Not much has changed today for Little Miss. She began on NJ (naso-jejunum) feeds of breastmilk last night, and today has been cleared by OT to eat 1 oz. every 3 hours by mouth. She chugged the test bottle so fast, the OT felt bad she couldn't give her more. We have to ease her into full feedings, eventually maybe nursing, because she may have trouble swallowing and breathing while she eats and could choke. We can't sit her up to burp her or to clear her if she chokes, so we have to start slow. But, slow and steady works for me!
Someone here on the blog gave me a tip to Google "breastmilk HAMLET" and it was astounding! A recent study from Sweden showed that a compound in breastmilk, when passed through the infant digestive tract, can kill cancer cells. It was specifically tested on the type of tumor Scarlett presumably has (we're still waiting for the pathology report to confirm). This has given me a renewed energy for pumping...if it helps to kill the cancer, I will do it for the next 5 years. Even if it is a long shot, I'm on it.
As for momma and daddy, we're eating well around here. If you're not from the Bay, you probably have no idea where we are. Even though we both grew up locally, the hospital's surrounding neighborhood is new to us. We are right on the edge of Oakland and Berkeley (across the Bay from San Francisco). There are great restaurants just a short walk from here, and we continue to explore as we can. The hospital food is lacking, to say the least. Children's Hospital = children's food. I've been living on chicken fingers, quesadillas, tater tots, burgers, pizza and broccoli for good measure. When we go out, we try to get real food. Our favorites are Genova Deli, Scream Sorbet, and Bakesale Betty. There is also a Whole Foods Market not too far away, so we get some goodies there too. Hopefully we'll get to more soon!