Well, Scarlett has decided she doesn't want to move up quite yet. She has thrown us two curveballs that have paused the move.
She has developed a rash. It started out on her leg where she had a band-aid. It has now spread all over her legs, face, chest and arm. We're hoping it's just an allergic reaction to something. She got a bath and some lotion to help calm her skin, and may give her some Benadryl. I had been pointing out this rash for two days, and they told me it was maybe eczema. It's not too serious, but we're watching it closely.
In addition, her liver is enlarged. The resident doctor told us this like it is no big deal. He said he's not really worried, just curious. Curious enough to have an x-ray that didn't show what he expected. Curious enough to order an ultrasound for this morning. Curious...
Despite these, she is eating like a champ. No more NJ feeds; everything is by mouth now as long as she keeps up. She is so skinny. I'm not sure what her current weight is exactly, but her ribs are sticking out and her skin feels a little saggy. She was always very small, in the 10th percentile of weight for age and below the chart on weight for length. Now that she doesn't have to be starved for so many procedures and recovery, she should gain more...until chemo, where she may have trouble gaining. But weight it not our biggest concern right now.
I had a moment where I realized that, in some unfair twist of horror, brain cancer might not be Scarlett's only challenge to overcome here. All the other, more normal things we were concerned about before her tumor was discovered are still lingering. Like allergies; I was worried she might be allergic to something when we took her to that last well check, but we never got to it. The enlarged liver made me worry that there was something else going on, separate from the tumor.
I think that it would be only fair if brain cancer was the only serious medical condition she has to face. She should get some kind of karmic pass for no future illnesses. She deserves it. Please, please, nothing else. I can't take it.
We've got a busy day today: another MRI (#7), liver ultrasound and hopefully a move. Tomorrow, Auntie Lindi is babysitting while Chris and I go back to Stanford to meet with the neuro-oncologist about the plan for the next few weeks. It's going to be an intense meeting, but we are actually a little excited to go somewhere outside the hospital together...it's a sad excuse for a date, but we'll take it.