We got almost no sleep last night. Little Miss did not sleep, so neither did we. Unfortunately, neither did the 7-year-old that shares our room now...we heard him complaining to his mom this morning! "She cried all night and now she just cries all day! This is the worst!" Sorry, buddy.
It's 1:00pm here, and Scarlett has already had a busy morning. A bunch of doctors checked in to give us a rundown of the next few days. They inserted a naso-gastric tube through her nose into her stomach for additional feeding. Chris and I resisted this as long as possible to be sure it was absolutely necessary, but she is not gaining weight fast enough, so down it went. Now, she will receive about half her nutrition by the tube; she can still nurse and take bottles, too.
The neurosurgery team has already referred her for evaluation by many other services. An ophthalmologist and physical therapist have already been in, and occupational therapy is scheduled. So far, no one is noticing any deficiencies; her eyes are fine, hearing is fine. She will likely need physical therapy as she gets older to help her range of motion, as she has stopped being able to raise or turn her head due to the weight of the tumor.
Otherwise, we're doing well. Chris will sleep at home tonight, since there is nowhere for both of us to be comfortable. The plan is to switch off every few nights, but I am not sure I can sleep at home with her in the hospital.
Happy New Year to everyone! Thank you for all of your support, comments and prayers over the last two weeks. We have had more than 85,000 views since the blog was started, so we know you are out there, and Scarlett is feeling the love!