We just got our first update from the operating room. All IVs and lines are in, she is intubated and surgery has finally begun. It has been 3 hours since we handed her off to the nurse.
We tried to absorb every minute with her this morning. We chose to have the nurses give her morphine through the night to help ease her and let her sleep, so she was very groggy and sedated all morning. I slept a few hours, but Chris did not. At 5am, the nurse had us bathe her one last time to make sure she was clean. A while later, the EEG was removed, so we got to feel her fuzzy hair one last time before it gets shaved off.
We sat together at the window and watched the sun come up. When it was finally time, I got to hold her as we walked down to surgery. The nurse there wrapped Scarlett and I in a warm blanket as we discussed the procedure with the nurse and anesthesiologist. I was so proud of myself for not crying when I had to hand her to the nurse for the last time.
We ate breakfast and packed up our room. She has a bed in the PICU now for after surgery. It will be a very intense few days as she recovers and we are very limited in when and how we can visit.
We met briefly with the neurologist this morning. When we were waiting for surgery, the nurse told us the EEG had been clear, no seizures. Unfortunately, that was not true. The overnight EEG showed that she is having a few very short, very mild seizures around the tumor. We can't see any signs of them, and they are mostly in her sleep, though the nurse did catch one. I can't believe we didn't know this was happening. We won't know what kind of damage or effects this has had for a while, so it is just more information to add to her file.
I'll try to keep you updated as best I can. We are a bit homeless now, with no room to settle in (PICU will be just a curtained section for one of us, no room, no table, no phones, no computer allowed). We are spending the day in the waiting room that had the most chairs. It's hot and noisy, but Chris is sleeping, my mom is here and I can write and read....that reminds me: I have been reading The Help by Kathryn Stockett. It is very good and has kept me quite engaged, despite the frequent distractions. Highly recommended.
More to come. Please pray.